Monday, June 6, 2016

People without medical/living with cancer experience, give me there suggestions on getting cured

This is just one example  of the daily barrage of advice and opinions I receive from people who A. don't have a medical degree and, B. have zero experience living with terminal cancer.  I chose this  one example  because  it is the most consistent and  because this person advised me in a vegetarian fb group while discussing recipes  for  making home made seitan (mock meat) Seeing me name as Leslie's cancer confessions this person decided to  "educate"me.  Despite the fact that  I  have  lived  with my mets well beyond  my life expectancy. ( which in my opinion makes ME the expert) And the fact that I am thriving.  I have to say, don't these people think if there was something that had a legitimate indication that it would help us life longer that the cancer  community wouldn't have already tried it.  But  seriously folks, as a vegetarian, I feel I am doing my fair part with the dietary portion of my treatment.  A huge majority of the suggestions I get are fringe  science, that are unproven, unsafe, and downright quackery.  So, below you will find the google plus post I received.

two days ago this was  posted on my google  plus.  I honestly don’t know how people can think that I wouldn’t try everything I could try to  stay alive.  This is vile, so I hope it doesn’t offend you, but it isn’t MY opinion, this was said to me.
WizardofRawJun 4, 2016


1Reply +Leslie Bowlus I will NEVER live with terminal cancer, because I understand what cancer is and how the body works, you think that you randomly by some form of luck “caught” cancer. I have seen MANY “terminal” “cancers” healed and people are living a normal life today free of all issues. Don’t get angry or take things personal just because you don’t understand, you can continue to blame random acts and continue to suffer or you can fix yourself and beat cancer, its your choice, I am helping people beat it everyday, but I don’t walk the walk for them, I just arm them with truthful information. 
If I was diagnosed with “terminal cancer” I would immediately get on a fasting, fruit, fruit juice program with some alkaline herbs, eating as little as I could and allowing my body the ability to heal, I have already healed myself from diabetes, acid reflux, heartburn, acne, inflammation, arthritis, and I lost 110 lbs in 6 months with no loose skin. I am a living example of what I speak. Thank you. 


Thank you for stopping by,

Leslie

Living with cancer isn't always about cancer. (a day at McHenry dam wti...

This was posted to my google  plus feed by someone two days ago.  I live a vegetarian lifestyle.  I have juiced, taken vitamin c and done so many proven therapies to stay alive.  I am at the 5 yr mark of  living with metastatic breast cancer, which makes me a sort of outlier in the mets community because we don't normally survive beyond  the  3 yr mark.  I must be doing something right, yet "experts" such as this continue to share with me their opinions.  I won't waste another moment of my life on such vitriol.  I just wanted to  share with you what  sort of crap people feel free to share with me on the daily.  

WizardofRaw
Jun 4, 2016
 
Reply
 
+Leslie Bowlus I will NEVER live with terminal cancer, because I understand what cancer is and how the body works, you think that you randomly by some form of luck "caught" cancer. I have seen MANY "terminal" "cancers" healed and people are living a normal life today free of all issues. Don't get angry or take things personal just because you don't understand, you can continue to blame random acts and continue to suffer or you can fix yourself and beat cancer, its your choice, I am helping people beat it everyday, but I don't walk the walk for them, I just arm them with truthful information.

If I was diagnosed with "terminal cancer" I would immediately get on a fasting, fruit, fruit juice program with some alkaline herbs, eating as little as I could and allowing my body the ability to heal, I have already healed myself from diabetes, acid reflux, heartburn, acne, inflammation, arthritis, and I lost 110 lbs in 6 months with no loose skin. I am a living example of what I speak. Thank you.

Tuesday, May 31, 2016

Living with cancer isn't always about cancer. (a day at McHenry dam wti...

Wednesday, May 11, 2016

Deep vein thrombosis

Oh my friends,
So much has happened in the past week.  I went for a regular oncology visit, and mentioned that I sound wheezy when I breath and that my port is causing me discomfort.  Next thing that I knew I was in the hospital side of the oncology dept, getting vein mapping done to determine if I had an infection or clot causing my port to be uncomfortable and Low and behold I have a blood clot in my left arm axillary area.  I also had a chest xray to check for clots in my lungs that may be causing my wheezing.  My lung still has fluid bilaterally, and also has a node. Nothing has increased in size since my ct scan.  So, our immediate concern is that I have a blood clot.  I am now taking xeralto to combate the clot, and I will be taking this long term over the next three months.  At that time they will do more tests to determine if the xeralto has done its job.
I will keep you posted,
Leslie

Friday, April 22, 2016

My Prescription Refill Nightmare

Oh My gosh friends,

This has been one heck of a frustrating week. It is all due to me calling my mail order pharmacy for a refill of my Letrozole. The optum rx was my pharmacy for 8 months with no trouble, but then they changed me over to Briova for Letrozole and Ibrance, and then Briova changed me back for only the letrozole. It is frustrating enough not to be able to choose who will fill your prescriptions, but it is super frustrating to be bounced back and forth from one Pharmacy to another at a whim. It is all a rather longish story, which I share in the video below.
In this weeks blog I wanted to share some facts and figures with you. I started to feel overwhelmed by thoughts of all I have been through these past 5 years, and decided it would all be easier to deal with broken up into tinier chunks. So I wrote it all down, at least what I could remember. This is what I came up with. My math might be off by a bit (probably under, not over)

It all began with a chest xray, that showed I had plueral effusions:
I have had
15 xrays
20 Petscan
10 CT scans
5 Mri's
5 Flu shots
60 Xgeva shots
90 Treatments of Taxol/Avastin
210 Treatments of Ibrance
300 Doses of Letrozol
This doesn't count the amount of pain medication Or nausea medication I have taken over the last 5 years.
So, cancer is a full time job, in addition to the meds, the treatments, and the pain management, there have been twice monthly doctor visits for the past 5 years, which is about 120 doctor visits. This all keeps me quite busy. I don't share this to make anyone feel sad about it, just to share the reality of what this cancer is...what it does. Despite all this, I have a really happy life with great family and a few really great friends. And I also Have you guys. I really appreciate You guys so so so much.
Thank you for stopping by, Take a moment to Like my video and give it a thumbs up on youtube, subscribe, follow or contact me.
Leslie



Saturday, January 16, 2016

Taxol/Avastin experience

Thursday, October 8, 2015

Just What Is The Cure?