Wednesday, May 11, 2016

Deep vein thrombosis

Oh my friends,
So much has happened in the past week.  I went for a regular oncology visit, and mentioned that I sound wheezy when I breath and that my port is causing me discomfort.  Next thing that I knew I was in the hospital side of the oncology dept, getting vein mapping done to determine if I had an infection or clot causing my port to be uncomfortable and Low and behold I have a blood clot in my left arm axillary area.  I also had a chest xray to check for clots in my lungs that may be causing my wheezing.  My lung still has fluid bilaterally, and also has a node. Nothing has increased in size since my ct scan.  So, our immediate concern is that I have a blood clot.  I am now taking xeralto to combate the clot, and I will be taking this long term over the next three months.  At that time they will do more tests to determine if the xeralto has done its job.
I will keep you posted,

Friday, April 22, 2016

My Prescription Refill Nightmare

Oh My gosh friends,

This has been one heck of a frustrating week. It is all due to me calling my mail order pharmacy for a refill of my Letrozole. The optum rx was my pharmacy for 8 months with no trouble, but then they changed me over to Briova for Letrozole and Ibrance, and then Briova changed me back for only the letrozole. It is frustrating enough not to be able to choose who will fill your prescriptions, but it is super frustrating to be bounced back and forth from one Pharmacy to another at a whim. It is all a rather longish story, which I share in the video below.
In this weeks blog I wanted to share some facts and figures with you. I started to feel overwhelmed by thoughts of all I have been through these past 5 years, and decided it would all be easier to deal with broken up into tinier chunks. So I wrote it all down, at least what I could remember. This is what I came up with. My math might be off by a bit (probably under, not over)

It all began with a chest xray, that showed I had plueral effusions:
I have had
15 xrays
20 Petscan
10 CT scans
5 Mri's
5 Flu shots
60 Xgeva shots
90 Treatments of Taxol/Avastin
210 Treatments of Ibrance
300 Doses of Letrozol
This doesn't count the amount of pain medication Or nausea medication I have taken over the last 5 years.
So, cancer is a full time job, in addition to the meds, the treatments, and the pain management, there have been twice monthly doctor visits for the past 5 years, which is about 120 doctor visits. This all keeps me quite busy. I don't share this to make anyone feel sad about it, just to share the reality of what this cancer is...what it does. Despite all this, I have a really happy life with great family and a few really great friends. And I also Have you guys. I really appreciate You guys so so so much.
Thank you for stopping by, Take a moment to Like my video and give it a thumbs up on youtube, subscribe, follow or contact me.

Saturday, January 16, 2016

Taxol/Avastin experience

Thursday, October 8, 2015

Just What Is The Cure?

Monday, September 7, 2015

A day in Chicago at Navy Pier

Monday, August 31, 2015

Holley Kitchen Lifer speech at American Cancer Society Cattle Baron's Ba...

this is the most informative, educational, and real human experience type of video you could watch. Here is some awareness you should not miss. 15 minutes long, but come on, you spend that much time surfing the web anyway. Watch please.

Monday, December 22, 2014

Christmas gift guide